Sharing The Hard, The Hope, and The Real

Kelly Mazza

Rett Syndrome is a rare neurodevelopmental disorder that can cause lifelong complications. The symptoms can affect every individual in different ways, at different times, and at different stages of the disorder. Guiliana was born 14 weeks early with 20% survival rate. Guiliana spent 87 days in Nicu. They created the foundation called Giulianna Marie Purple Butterfly with the hope of finding a cure and raising awareness for the Rett Syndrome. Giulianna is 18 years old now and cannot leave her home because she doesn’t have the proper ADA accessible van to old all her equipment. The Sky is yours along with other non-profits donated together to get her the new van.